This webpage is prepared to complete some tasks of the Association: creating an informative-communicative network, educational work, maintenance with information for doctors, medical professisonals, patients and their families, also for people who have faced problems because of hereditary and rare diseases.
     Alongside with the Association purpose, tasks, activities and programs, in section Rare illnesses it is possible to learn about modern achievements of science in diagnostics, treatment and preventive maintenance nervously-muscular, neurodegenerative and other rare illnesses, the problems connected with health and a life of patients and their families.
     In our website in sections the Information from EURORDIS (the European Aliance of Rare Diseases), IPWSO (the International organization of syndrome Prader-Willi), ENMC (the European Center of nervously muscular diseases) and the Center of Rare Diseases of National Institute of Public health services of Italy you will find information from our partners in achievements in the field of the rare diseases, new initiatives of the European common wealth, development of methods of treatment and preventive maintenance of rare diseases and introduction of  "Orphan drugs», about the international and domestic congresses, conferences and forums in the field of rare diseases In particular The latest news  can be learned in presented electronic network editions Eurordis “Nesletter”,  ‘ TREAT-NMD Newsletter " and  " DIA Daiy ” мнение и пожелания.  
    In section Forum, Discussion there is an opportunity for discussing actual problems, discussions and receiving advisory help.
     In section For doctors-participants of the network  there is an opportunity of information exchange, participating in the organization information and communication network on rare diseases, creating a database of the national  medical-genetic register.
     Patients with neuromuscular and other diseases can be registered on our page with the purpose of receiving of consultation, medical— genetic help and the solving problems of medical social character.
     And, at last, you can share your problems, express your opinion and wishes.

   We are grateful for your responses and wishes.
Welcome to our site!
President association   Albert Matevosyan