To promote: |
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To introduction of organizational and treatment-and-prophylactic measures and carrying out of actions directed on improvement of quality of a life of persons{faces} with hereditary nervous both nervously-muscular and other rare diseases; |
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Medical rehabilitation, social adaptation of persons with ННиНМЗ and rare diseases; |
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To promotion and protection of interests of patients and their families in corresponding state medical, social both other bodies and institutes; |
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To carrying out of scientific researches in the field of epidemiology, diagnostics, treatments and preventive maintenance of Rare Diseases; |
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To increase of a level of knowledge and spread information among of doctors concerning rare diseases (neuromuscular, neurodegenerativ and other diseases); |
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To expansion of knowledge and culture of the population in the field of a hereditary pathology; |
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The Оrganizations (establishment) the center on nervously-muscular, нейродегенеративным and to other rare diseases
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To introduction of new methods of treatment and Orphan drugs for treatment of Rare diseases;
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The Оrganizations of an information-communication network in Republic on are diseases with integration in European an information-communication network; |
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To information interchange and experience, to adjustment of contacts and cooperation with the partner organizations |